Showing posts with label work. Show all posts
Showing posts with label work. Show all posts

Sunday, July 12, 2026

That Sweet Spot

I think I found the sweet spot. I made this venn diagram the other day and it really inspired me. Something clicked in my brain and I've been doing a very good job taking care of my body and making smart choices for myself. Even my cravings have diminished substantially.

 


I really spent time thinking about how my previous big successes could help me make smarter choices for my body and health. Where could they overlap and how could it help me. This was what I found that I need to thrive.


Support: From my family and friends. Everyone to know what I'm trying to accomplish and to check in with me regularly about it. 

My mom and I at our gym post-swim. 
#winning & twinning!


Example: For me to serve as an example to others. I do very well when I have people who look up to me. It's not an ego thing at all. It inspires me to want to do better. I feel more accountable.

Tools: I need the proper tools to thrive. Gym membership. Pool access. Water weights. Swim suit. Trolley to keep all my gym stuff in. Healthy foods that I can plan around.

Smoothie making going on up in here


Goals:
I do well with both long term and short term goals. Like my big goal is to weigh 200lbs. But my goal this month was to get under 280 (goal already hit!) My goal this week is to lost 2lbs. My goal every week is to swim 3 days.

Small Steps: This not only applies to exercise, but to eating as well. I tell myself "What's the best choice I can make right in this moment. For this one meal, snack, right now." Then I do it again and again and again. Small pebbles can make a mountain. One grain of sand can make a beach.  

Plan: I can't accomplish anything if I don't have a plan. Meal plans, workout plans, weekend and weekday plans. I do best when I have a concrete plan and then I can modify as I need around it. With no plan I sink quickly and revert to ingrained habits that have been formed over a very long period of time. I'm looking at you Taco Bell.

Rewards: A little something just for me now and then keeps me motivated. Non food rewards of course. Even a small thing like a face mask or lipstick makes me feel good about my hard won battles and new neuro pathways that I've created. It keeps me going. 


This stunning constellation monstera was a little treat for myself. 

Doing it for myself:  I can't accomplish anything if I'm doing it for other people. It took me a while to get to that point when I was quitting smoking. Which is why it wasn't working at first. But when I decided to stop trying to do it for other people and to just do it for myself it clicked. Same with school. At first I was doing it just to get a job. But when I switched and did it for a career that I really wanted it clicked and I flourished. With health I can't lose weight for a trip or a big event. It has to be "just for me."

Patience: I'm AWFUL at being patient. It's one of my big weaknesses. But all of my successes have come with patience. I can't force myself to be successful and accomplish something no more than you can force a flower to bloom or a tree to grow. I can give myself the proper environment and tools for achieving my goals, but I have to just wait to get there. 

Failure is ok: It's through our mistakes that we learn. I firmly believe that. I have made every mistake you can make while trying to do what's best for my body. Setback after setback. And that's ok. I'm allowed to start over and over and over. A lot of life is like that. It's never too late to keep trying (unless you're dead.) And thank goodness I'm not quite there yet. 

 

Wednesday, April 22, 2026

My dogs, my life

My mom likes to say that my dogs are like my children. She's not wrong. Although they take up less time than children, I'm sure they take up way more time that your average big dog. Here's what my day with them looks like.


I wake up to both of them in bed with me (bliss.) Max has been nudging me with his tiny head and nibbling at me letting me know it's breakfast time. Though sometimes my husband feeds them breakfast and they just pile back in to bed with me, for which I am very grateful. We always have rubs and cuddle time where I pet them, rub them, kiss them and just in general tell them how amazing they are. I wish I could start my day with someone doing that to me.

8AM Get up and feed the dogs.
Open the curtains, turn on Max's heated blanket. Turn on the lights.
Drink water and take my own medication (dogs come first.)

Make important phone calls. For me or my son. Typically doctor's appointments for referrals to a specialist (or two, or three.) These calls can take up to an hour each.

While I'm on hold I get dressed. Typically with both dogs thinking this means we're going out somewhere. Sometimes it does. Most of the time it doesn't.

 
I make some coffee, put on the Monterey Bay Aquarium live feed and try to journal. Usually at this time they are getting sick of being ignored and they both want my toast. 

9AM If it's not a gym day then I give them more loves, pets and rubs. I'll often sit on the couch with them both while I try to get more work done. This can be blogging, trying to save us money, chasing down money we are owed, texting my handyman... just life stuff.


The couch is THEIRS

10AM If it is a gym day then I'm off to the gym. Then they are typically ((GASP!)) left ALONE! If not I like to be productive in the house. Start laundry, do leftover dishes, clean up, etc...

11AM Is walk time. I try to walk them for about an hour. If I'm at the gym I typically do this when I get home. Or I make my husband do it if he's home.

My mom is even worse. She gives them massive, heaping spoons of peanut butter. 

12PM Snack and "Peanut butter pill" time. Max has to take Prilosec every day for his delicate tummy. If you see a pile of vomit in the house, 98% of the time it came from Max. 100% of the time if you find pee it was Max (but only when it's raining out and he doesn't want to get wet.) We even have a song that goes with peanut butter pill time. Margo just gets a little spoon of peanut butter. Then (because that's not enough of a treat) they get some crispy salmon skin. 

Yes, I bought them that massive dog bed to share. They adore it.

1PM They will usually rest after a belly full of snacks. Margo sometimes gets playful. Max rarely will play with her, so guess who does? Yup. Me. Her favorite game is keep away with her black and white stripped fuzzy toy that rattles. Not to be confused with her brown and white fuzzy toy that rattles. But that's her second choice. I have about 10 of these hidden so I can replace them when she wears them out. 

Margo and mommy resting

2PM Rest for all three of us. I'm usually down from 2-5 or so during each day. That's a lot of time, but I have my little pack to keep me company.

5PM DINNER TIME! You bet Max doesn't let me forget it. In fact he usually starts bugging me around 3:30. Very restful.

My boy Max. "Little Man, Maxie P, Little Chonkers, Chubby Guy, Dumptruck..."

6PM Dad comes home or is done with work. Now they get love from Dad.

7PM We make dinner and eat. Of course this requires close supervision by Margo. Sometimes Max too, but he likes to wait till the food is cooked before he makes his move.


7:30PM Another favorite time of theirs. They beg while we eat dinner. Then we all cuddle on the couch together. If we could do nothing but this for forever, they would be quite contented. We typically watch TV while they get more rubs, loves and eventually burrow themselves in one of our massive piles of throws covering our couch. Or should I say their couch.

Beautiful Margo. So cute when she's asleep. A bossy terror when awake. (Baby Girl, Little Stinker, Margo P., Sweet Baby Girl, Precious, Bossy Pants.)

 9PM Time for bed. Typically Max will come with us. Lately they've both been wanting to just sleep on the couch for most of the night. Margo even does so for the entire night once in a while. I think because it's spring? In the winter they both sleep all night with us 100% of the time.

Although if we want to be intimate you can guarantee that it's the night they both decide to come to bed with us. 

 I do want to improve managing my time and having it include art. I seem to constantly put that one by the wayside and instead fill my time with tasks or dogs. As much as I adore my babies (I mean dogs), I have to constantly remind myself that they are dogs. They'll be ok if I do art for an hour. Their world won't end and they won't feel abused. Same if I leave them home alone to go take care of myself at the gym.

The better I take care of myself, the more I can take care of them.  

PS: The whole time I wrote this they've both been yapping at me like I forgot something. I didn't. They just want my undivided attention. I have to work on that.  


 

Thursday, June 5, 2025

Exertion is sometimes worth it

The older I get the more I like my home environment to reflect where I am in my life right now. My values, my hobbies and interests, my friends and family. 

Last summer I updated my special room. I made an art corner and bought a beautiful desk. Everything in the room is special to me and exactly the reflection I wanted it to be. But now...

Upon my epiphany that I want to commit more of my time to my art I realized my space for my beloved ceramics was woefully wanting. My "art table" had become a "catch all" for everything from future craft projects to things I need to return. Even a bath mat found its way in. ACK! 

Is there even a craft table in there!?

Then I realized that the space (once de-cluttered) would be great for TWO art tables. One devoted completely to ceramics and clay and the other for my other art. Painting and drawing mostly. Then my desk (which I'm at right now) for computer things.
Voila!

But as I said previously, I am disabled, so I need to do this in stages. Something I HATE TO DO! I love to swoop in like a vulture and make the space perfect all in one day. I think this will take me well into the weekend. But I see the vision and it's coming along nicely.

Sweating like a sinner in church.



My "Visible" device telling me to stop. I listened.

Even though I have to stop and do this project in spurts I'm excited for the end result. I have time booked at my ceramics studio tomorrow and will buy some clay to take home. Anything I make they can then fire for me. 

I'm also excited to get some of this clutter out of my special room.




Monday, June 2, 2025

Hey Me! You're Disabled Dummy!

Holy hell. I had a big "aha" moment the other day. 

I needed to complete a certain number of hours of training when I renewed my license. A very large number of hours. I've been procrastinating completing them. This past week I finally got down to work. It took me about three hours, but I finished one course successfully. 

Then I spent the rest of the day exhausted and seeing double from so much reading for so long.

Completing just a very small section of what was being asked of me left me feeling physically ill. Why was I putting myself through this? 

No... seriously... why? The more I thought about doing this 10 more times the more nauseous I became. Was I even this person anymore? Didn't I leave all this behind because I'm disabled and can't do it any longer?

Yes. Yes I did. And no, silly. I don't have to do it 10 more times. I don't have to do it ever again if that's what I chose. Because why put my brain and body through that? I can help people in many other ways.

I feel like I've been in limbo ever since I left work. At first I was too ill to do hardly anything. But the last (almost) two years I've been torn between art and therapy and not really doing either that well.

I've always been an artist. I am an artist. I adore making ceramic pieces, drawing and painting. It's time I drop all the studying, quizzes and shit that makes me ill and get back to creating things. Like many disabled women artists that came before me.

Frida Kahlo

Yayoi Kasama

Lisa Bufano

Emily Barker

Judith Scott

And many many more. I'm honored to join their ranks

Me taking a much needed chill pill


Tuesday, October 29, 2024

Times and Tides

I have learned in my 51 years on this planet that if I pay close attention, nature is the best teacher of all. That's one of the things I love most about Polynesian culture. Although it's not the only culture that lives so close to the Earth, it's the main one that I know and admire. Living on a volcanic island, like Hawaii and Iceland, you can't help but live in sync with nature. You are hugely dependent on nature for your survival. Any second you could be wiped out by her wrath, or enormously rewarded. We've lost that connection in more urban environments. No matter how many parks and green belts there are.

Not the same as a park

One of the big lessons nature taught me is that no growth can occur without destruction. Usually complete and violent destruction. Mother Nature loves nothing more than a clean slate. I respect that hugely. I look back on my life and see my own biggest periods of growth occurring after total devastation.

The Hawaiians also know this, which is why they focus on the "now" so intensely. Everyone has heard of "island time" and "hang loose." To me those mean exactly what my mother practices and knows so well. "Life's too short and precious to rush through." It's very easy to get caught up in the pressures of everyone else around you and start rushing through everything, even when there's no need. Rushing to our cars from the store. Rushing through the store. Rushing to the store. What happens if we're late? Typically nothing awful. You're just a little late *but not by "Island Time!"

Hawaiians also take full advantage of all of nature's gifts. The original native diet was very high in fish and fruits. It wasn't until American's came to take over that we introduced Spam. Although the Japanese labor force that was imported in to work the pineapple fields can take the blame for rice. I felt like I had never eaten a banana before until I had an Apple Banana in Hawaii right off the tree. Here we shop at the grocery store, or if you're very lucky, the Farmer's Market. But we typically eat far from nature. 

I'm very guilty of this. Frozen pizza, macaroni and cheese, heck! Even just cheese and yogurt. All are heavily processed foods that are known to contribute to disease. Does that stop me? No. It's what I grew up with and what I love. Though culture can and does change. Again, nature taught me that nothing is permanent and everything changes all the time. Even when you can't see it. Seashores are being eroded. Soil shifted. Rocks worn away. Diamonds created from stardust. Humans from blobs of cells. 

There is nothing from nature on this truck

Every so often I feel like I wake up from a culture induced stupor and wake up to the tides of nature. Fall has historically been one of those times for me. The changes in the natural world are so profound at this time that I can't help but to take notice. This always has been a time of inward reflection for me. This fall I didn't like what I saw.

I saw myself self-sabotaging over and over and over again. Doing nothing to support my own health. And little that nurtures my mental well-being. I have been shoving down the anger and grief over the death of the main male figure in my life, my Grandfather, who passed violently three short months ago. I have been feeding myself to comfort mentally rather than feeding myself what I know I need physically. I have been taking great care of others and not so great care of myself. A tried and true pattern of mine. I put other's preferences ahead of my own and lose focus of my own path as it crosses with others.

I am painfully aware of how easy it would be for my to lose myself completely to my new family. Stop going to the gym and just focus on them. But I have goals and I need to re-focus right now.

My Goals (what I want to re-focus on)

  1.  My health. Eating the foods I need to eat to be as strong and healthy as possible. High fiber whole foods that will product short-chain fatty acids in my gut microbiome. Not long. This also includes going to the gym at least three times a week to work on my strength and flexibility. 

  2. My creativity. Setting aside time for writing, ceramics, drawing, painting, whatever I want to express what's inside me.

  3. My emotions. Processing my feelings about the horrible death of my grandfather.

  4. My empathy. Spending time with my son, my mother and my new family. Also in here I put completing my CEU's to maintain my MFT license.

  5. Making Money. Selling our unwanted stuff on eBay and maybe starting a support group of some kind. Getting back to working one or two days a week.
To accomplish my goals I need to be committed. Dedication and focus is what I need right now. Because there will always be more laundry and I don't need mac n' cheese.
I rebuke you Satan! 






Monday, April 8, 2024

Am I Ready?

I keep having dreams where I'm in an elevator and it's not going where I want it to go. I take it to mean that I don't feel in control of my life right now. 

I thrive on change. That's one of the things that drew me to therapy. As my mentor and supervisor once told me "Even the worst session only lasts an hour." Each hour a new person would come in with new issues and it was a huge change, and a challenge. A fresh chance every hour to help someone change their lives.

I don't miss that level of intense work, but I do miss that feeling of helping people in that way. I feel ready to start pursuing my CEU's to turn my license back to "active." 

I feel able to take on maybe a weekly support group. Especially this summer when the weather is ok. Storms trigger my migraine pain like crazy.

But also...
I'm loving ceramics. Spending time doing art is intensely therapeutic for me. So I will absolutely keep time for art. I have no intention on working full time at a 9-5 job ever again. I just can't do it. My body is much too unpredictable.

I also get a lot of pleasure out of being available to my dogs, husband, son and mom. If anyone needs me for anything I can help.


 


Thursday, January 11, 2024

My Two Loves

For as long as I can remember (and that's quite a long time now) I've had two major loves in my life. Passions really.

1- Helping people

and

2- Art

I remember if there was ever someone in need or who looked "different" I would befriend and help them right away. I choose my best friend in the first grade not based on if we wanted to play the same game, but because she was so physically unattractive she was getting teased. Helping others is something I was just born to do.

A recent bowl of mine waiting to be fired.

I am also a born artist. My father was (maybe still is?) a visual artist and a musician. My mother is also very creative and has an eye for design. My grandfather said he had someone in the family who was also an artist. I love any medium I can get my hands on, but oil paints are my real passion.

I like photography because I always have my camera on me (my phone). Oil paints are both very expensive and very toxic. You have to use a lot of caution working with and around them. It was fantastic when I had a whole studio to work in. Doing it from home is trickier. Ceramics has been a joy. I never have any expectations for myself. I just do what I want and relish the process.

Having these loves you would think I would want to do art therapy with people? Not really. I like being "in the zone" and alone when I do my art (ceramics is the exception). Each requires my full attention. Mixing them feels strange.

So now that I have some strength and energy back, who get's that attention? What do I focus on? I feel pulled to reignite my love affair with painting. But I also want to get back to helping people more. Is there room for both in my future? Or will something else suffer.

I already feel like each day is bursting. Where do I squeeze in the time for my loves? That's a challenge most people have. The answer is to just make it a priority and do it. Just do it. 


Thursday, January 4, 2024

All Is Well and As It Should Be

Well... We found out today that Margo is NOT PREGNANT! There will be no puppies taking over my life. I was shocked and relieved. Although we would have taken care of her and them, bypassing that gooey experience doesn't leave me wanting. I'm thrilled to just have Margo.

She arrived last night around 8:15PM. She slept with us in our bed all night. She's a very inquisitive girl who speaks her mind. 

We also found out she's somewhere between 3 and 5. They can't tell exactly, but young. Much younger than Max who is around 8. 

So now I have a big chunk of my future back. Remember what I just said about not having a hold on the future. Well this just echos that now doesn't it.

Max and Margo are getting along very well, which pleases me. I think it's only a matter of time before they play and cuddle. Thank goodness Margo has a tail or it would be hard to tell them apart at a quick glance.

Margo (on the left) and Max guarding the house.

Max is showing some signs of jealousy, but that's to be expected. We're doing all that we can to make him still feel special. But thank goodness there's no need to buy him an "I'm the step-Dad" t-shirt.


Monday, June 26, 2023

My Simple Life

I had some lovely time to myself this morning. I was reflecting on my life and how much it has changed. I was thinking about how much of my life used to be consumed by work. Just like my husband. How I didn't even have time to think about eating or how to take care of myself. I was too busy taking care of others. My clients, my dogs, my husband and my son. I absolutely came last.

Now here I am stripped bare. My son is living with my mother. No career. One adorable little dog. I have all the time in the world,

I realized that like this wild and crazy collage of my family my "core" is a jumble of many things. Where there used to be one massive boulder in my day "WORK" there now are many smaller things. My garden, my pooch, my family, meals, movement, ceramics/artwork, socializing... I still have an incredibly rich, full life. It just looks completely different now.

Here's a story...
My mother bought me chives this winter and they didn't do well at all. When I was planting my spring garden I dug them up and planted them all together in a small clay pot. I kept them out back and still took care of them. Recently they all died after living their life cycle. I had let them flower rather than eat them. I was going to re-use the pot they were in, so I started digging them out. And look what I found!

From these tiny little chives came a giant bowl of onions. I don't even know how they all fit in that small pot. I just kept digging out more and more beautiful onions. I thought the plant was dead and useless but where I couldn't see it was making magic. 

I constantly learn from nature. She is a fantastic teacher if you just pay attention. There's a lot you can take away from that onion story. Growth happens where other's can't see it. When you think you're dying you're really transforming. Thrive where life puts you... I could go on and on.

My life is as full as that pot. I just have to dig a little to notice and see it.




Thursday, April 13, 2023

Beautiful Garden

I did it! I did it! I finally asked for help! 

Well, I've asked for help before, but never for a big project. I'm a massive "do it myself" person. I always have been. Group projects in school? I detested them. Hated them at 10 and hated them at 42. I'm not a "let's work together" girl. AT ALL.

So this is a huge, momentous occasion worth celebration. I saw something that needed to be done. I assessed my ability to do the task on my own. Saw it wasn't possible. AND I asked my family for help. They were so sweet and jumped right in. The results are fantastic. We all brought our skills to the "clean up the back patio" project.

Farmer ME!
(I love my back brace.)

My mother knows a lot about plants, their needs and pruning. So she tackled my neglected pots. She also put together the beautiful Lodge grill that she bought three years ago. Finally we'll get to have some family cook out's back there. That's her jam.

My son brought the muscle. He cleared out a lot of weeds, spread mulch, took out trash, filled our compost bin and just in general did everything I asked him to do without complaint. He's great at doing what you ask him to do, as long as you're specific.

We crushed my to-do list in two days and I'm thrilled with the results. I should have taken some "before" pictures, but here's the flow now...

Max enjoying his bed in the sunshine
Next to my new potting trunk
YAY! All my pots and soil are out of the weather.

Some of my beauties. 

Our new hibachi area. 
The pail is full to the brim with charcoal.
My mom suggested spray painting this table hot pink.
I'm down for it!

My beautiful freesias are in bloom.
Mom re-potted our big palm.
She's a gardening BEAST!

Newly fixed up plant corner.

My gardening table to the right.
The left is a long table and chairs for feasting and chatting.

Tomorrow my husband is going to help me with the lights and to hang some canopies on the pergola for shade. I can't wait to finish up and have it be our dining room. (Since we gave up the indoor one for his office.)

I'm very glad I asked for help and I will do it again in the future. Working with my family was much more fun than doing it alone.


Monday, December 13, 2021

Reflecting on 2021

 


This year has come with many gains and loses for me. I lost my beloved Nana in mid-November. She was a second mother to me. Even though someone slips from the evil grasps of pain, it's still a loss. I know she's no longer suffering. But I also know I will never see her or hear her sing-song voice again. I kept some voicemails she left for me over the last few years and I'm grateful to have them. She had such an infectious laugh. One of my favorite things about my family as a whole is that we have all maintained our inner child. I can't say that for most people.


I also lost my sweet puppy girl of 16 years, Sweetie. Which I wrote about here. My son moved out of our home in an explosive way. That felt like a loss. And I felt like I finally had time to mourn my lack of ability to work. 

But my life is never just about loss. In fact every time I have a tremendous loss (like no longer being able to work), I also tend to have a huge gain (like my mother moving around the corner from me after being in England). 

So let's talk about my gains this year. 


Right up there with getting my clinicians license is my new fella Max. I worked very hard for that license. It was the climax of my education and training. Two thousand hours of working with clients, suffering through TB treatment, a total hysterectomy, a brain tumor and the start of my Mitochondrial Disease...WOW! For Max to be just as great speaks how important he is to me.


Another bright spot of my year was how much I was able to reconnect with my friends and family. My husband and I had a blast at "Friendsgiving" in November. We saw a lot of family that we missed last year. I had a life-changing heart-to-heart talk with my best friend since first grade. In short, I basked in the company of other people.

I like to think of myself as some kind of "Uber Introvert" who doesn't need the company of other people. But that's a lie I tell to protect myself from feeling rejected. Honestly I love to be around other people. And I'm doing much better at letting my limits be known.

Here are just a few things I want to remember that happened this year that were positive:
  • I spent time with my Grandmother-in-law. One of my favorite people in the world.
  • I had a lot of laughs with my Mama (just like last year, but it's important to savor those moments.)
  • I produced some truly horrible art, but had fun doing it.
  • I took some fantastic photos.
  • I found new ways to do the things I love (asked for help, waited till later, worked around my disability.)
  • I stopped fighting the need for rest.
  • I went to the Monterey Bay Aquarium when they were practically empty. A dream come true!
  • I saw the Mendocino Botanical Gardens for two days with the love of my life.
  • I was finally approved for Whole Genome Sequencing along with my son and mother.
  • We built our dream patio, complete with waterfall!
  • I got my little room back (once my son left).
  • I learned I can drink red wine again with some magical little drops that remove the sulfates. 
  • I was kissed and hugged about a million times.
  • I got back down to a weight that I feel ok with. Not perfect, but better.
Just looking at this list makes me feel both happy and proud. I love my life, even with its limitations. I am safe, warm, fed and very loved. I wish everyone in the world could say the same. That's my wish for 2022.


Tuesday, May 4, 2021

What Comes Next?

Almost a month has gone by since my last post. Many things have changed and much has stayed the same.

I passed my licensure and am now a fully certified Psychotherapist. That's very exciting news. I passed on my first try despite the heat, a mask and a migraine. I felt and still feel a huge tidal wave of pride at that accomplishment. It also marks with a big period an enormous part of my life. Endless schooling, three degrees, 3,000 hours of practice, studying for millions of hours and now a framed certificate on my wall publicly declaring that "I DID IT!" 




What comes next?

That's the part that has changed very little.

I still can't function at all without my Botox shots for migraine every 3 months. Though by the end of month 2 it starts to wear off and then I'm a mess once more. Dizziness increases, pain, sound and light sensitivity, seeing things that aren't there, my memory gets even worse (which is really saying something!) You get the general idea.

Then there's the pain. The pain in my body is constant. I rarely take anything for it because I feel pain is the communicator. Sometimes that communicator is broken (like my migraines). But sometimes it's a valid message. I don't want to shut down that relay with my body just yet. 

But the number one ruler of my life is fatigue. When I become exhausted all systems stop. My memory, focus, ability to talk easily, train of thought, muscle strength, all go out the window. This happens daily, usually around 12-3PM. I rest and sleep and feel better when I get up. If I don't rest and sleep it gets worse till my muscles start to shake and spasm and I get cold sweats. 

When people say to me "Now that you have your license you can start seeing clients again!" I cringe. They have no concept of what goes on in my body. In their defense I also "fake normal" really well. "You can just see a few online" the friendly person might say. But that involves the ability to be there for the person 100% and many hours of record keeping, preparation, etc... I'm not just a face on a monitor. 

Therapy is out. 

So what comes next?

I'm essentially taking some time off to mull that over. I'm vaccinated and enjoying being social a little bit again. I'm looking forward to taking a few small road trips. You know... cutting myself a break!

For the future I'm considering a few ideas. Writing a mental health book is the first thing that comes to mind. Both an interventions book for clinicians and one for consumers. I like the idea of writing because I can do it anytime I feel up to it.

Right now I'm swimming often at my mother's pool. Trying to work out my CPAP machine. Attending appointments at my muscle clinic, my migraine neurologist and my regular doctor. Spending time gardening (when my body allows it), cooking (see previous comment) and hanging out with my ever-fun family.



We'll see what comes next.





8 years and 4 months

It has been eight years and four months since I first officially reported having muscle weakness. July and August were rough. So rough that ...