Showing posts with label symptoms. Show all posts
Showing posts with label symptoms. Show all posts

Thursday, June 4, 2026

Way back when there were dinosaurs

About 20 years ago I decided to take up running. I was a healthy 35 year old. All of my in-laws ran at the time. And somehow I got sucked into the magazine Runners World. They had really excellent articles. So I thought to myself if all these people can run there's no reason I can't too.

I went to our local running store (yes, we have one of those) and was "fitted" for personal running shoes. They were so comfy. I wore them for years. Once properly outfitted I gave it a try.

At first I fast walked not very far. Then I did a little jog. Then came my Fitbit and headphones. Because I was getting serious. I was a successful jogger! Next I worked on my form and finally became a runner. I had other women friends who ran too. We decided to sign up for a 5K.

Here comes the interesting part.
The whole time I was running, even before the 5K, I noticed that my right hip would hurt for no reason. I tried everything to get it not to hurt. Stretching, slowing down, favoring my left side... but nothing helped. I even stopped running and just burst into tears one day. What was I doing wrong?

The day of the 5K came. I even made us all matching hats. You can guess what happened. My friends (at my urging) left me in the dust. My hip started to feel like it was on fire. Every second of that run was torture. And I had no idea why.

I had practiced. I had stretched before the race. I wore my "special shoes." I read the magazine. I did everything right. 

One of my friends who had finished the race actually circled back around to encourage me to finish. I did, but I walked across that finish line. I got passed up by a heavily pregnant woman and a person dressed in an inflatable pickle costume. I got passed by a pickle.

I was humiliated that my friend (wearing jeans and converse shoes) came back to get me. I hated my body that I felt had completely betrayed me. Looking back I wonder...

Could it have been my earliest sign of mitochondrial disease? Does it go back that far? Even further? My mom says I was a very sleepy child. I remember falling asleep in class all of the time. In high school I would go to the nurses office during PE just to get a nap. Eventually she said I couldn't do it anymore.

Maybe I had mitochondrial disease my whole life and it just super worsened with TB and my brain tumor? Who knows.

I do know that when I walked the dogs today I had that exact pain. Now I recognize it as a feeling like my hip muscle just can't hold my hip bones into place. It feels very weak and painful. That exact same pain as 20 years ago when I tried to be a runner.

After that 5K I stopped. Something I don't regret. My body obviously isn't made for running. It's made for eating peanut butter and chocolate ice cream

 

Monday, May 4, 2026

2026 Has Been Rough

Last week my mom was in the hospital for her heart. She seems to have a medical crisis every year, but this one was by far the scariest. Well, that's not true. In the moment they are ALL terrifying. But this one was the closest to death I think she has come. I was sure she was going to die. I'm not ready for that yet. Not ready to lose her from my life forever. But will I ever be? I'm sure no.

This year has been crap for me medically as well.

 

 Eye infection in January. Starting the year off with a BANG.

 

Bad pink eye in February. Yes, it spread to the other eye. 

 

Urinary Tract Infection (UTI) in March. The fun just keeps coming.

Hives that pop up after compression, touching grass, hay or my dog's claws. Or just because.

 

My fingernail strangely lifting up off my nail bed (2 of them.)

In April I had another round of pink eye. But I didn't take any pictures this time. This will have to do...

Now it's May and I woke up with thrush yesterday. Fuck my life. 

This is a great reminder for me.


 


I had some labs done recently since I told my doctor I've been obviously have immune problems. 



She's referred me to a rheumatologist. I haven't seen one since 2018 (when I also had positive labs) and it wasn't a great experience. They thought I had Rheumatoid arthritis (RA), but it ended up being Mitochondrial Myopathy. I was put on medication that just made my symptoms much much worse (plaquenil) for RA. So needless to say I'm nervous about it.
 
Next week I'm seeing a neurologist for the second opinion about my "silent seizures." Does she agree that I have them?
 
Then comes the ENT to review treatments for my right year that likes to plug up on me for days on end when the pressure changes.
 
Also the gynecologist to talk about possible HRT to help my post-menopausal symptoms.
 
In the meantime I'm hoping to get my referral for Botox for migraines. I've been fighting with them about that since November. 
 
And people like to ask what I do with "all my free time." The answer is I don't have any. 

I feel like I don't even have enough to do art, When I'm not doing all this I'm trying to keep up with my precious pups, the house or with the people I love.  Of course I also spend a huge chunk of my day unconscious.
 
So yeah. 2026 has been kicking my butt.  
 

Thursday, March 27, 2025

Looking Behind and Ahead

There's a saying in the field of Psychology that "Looking behind too much will cause depression. Looking ahead too much will cause anxiety." I think that's true, but looking behind is also how we learn.

I've had more than a few "AH HAH" moments from looking behind. In fact, I recently had an important memory.

In 2011 (about 14 years ago) I was trying to get into jogging. I wanted to jog a 5K. It was my goal. I signed up with a few friends to do it together. But I quickly discovered I had a problem. No matter how much I stretched and trained my right hip remained tight. It would cramp up on me even on the shortest, simplest of runs. I got new shoes, supportive leggings, tried many different ways to solve the issue, but nothing helped. 

Me in 2011
Yes... I'm stomping grapes with my bare feet.

The day of the 5K came and I ended up walking it. Even that was hard and painful. My friends finished quickly and then one circled back to walk with me and cheer me on. I cried a lot that day out of frustration. It's the first time I can remember my body just not being able to do something that I felt it should.

I had completely forgotten about that time until now. It seemed so easy for other people and I found it impossible. I now believe that was the start of my mitochondrial disease. That it stretched back that far. Now I live with that feeling of frustration pretty much every single day.

2025
Me sitting on my butt NOT grape stomping on a platform.


My right side has always been my "problem" side. My right hand is weaker. My right ankle cramps and I have drop foot on my right foot. It makes complete sense that the cramping I was having in my right hip was the very beginning of my muscle problems.

I have an appointment next week with my pain doctor. I cancelled the last one out of fear. This time I'm keeping an open mind and what to hear what she feels my options are.


I'm still working on this lesson.



Wednesday, November 20, 2024

Terrifying Side Effect

My health feels overwhelming most of the time. 

Yesterday I had a major episode that was truly terrifying. I had my annual flu shot in the morning. I've never had an issue with it ever in the past, nor with any other vaccination. Ever. Yesterday was a first. Three hours after my shot I felt myself getting weaker. By five I was terrified. I was home alone and my muscles were so weak I could barely work my phone or speak. I though about calling my mom over, but my husband was due to be home any second. I also thought about calling 911, but I didn't want the dogs upset. (Yes... even my dogs come before me.) 

Finally my husband came home. As soon as I started talking to him I started sobbing. I mean 'snot crying' big time. I could hardly get out what happened to me between the tears and muscle weakness. Somehow he understood. I asked him to make me a Gatorade. The last in the house. It has helped in the past. He then crawled into bed with me and comforted me. It was all very helpful. I decided I would wait and see if I got any worse and if I did, then I would go to the hospital. 

Fortunately I didn't get worse. After about 90 minutes after the Gatorade I even improved a little. The tide was being pulled back. I was so scared. To suddenly lose your muscle strength like you've been hit with a blow dart. It is a very horrific thing to experience. I haven't had that happen to me for about four years now. The last time I went to the hospital by ambulance. 

I still feel weak today. When I went to the hospital what made me better was a full IV fluid bag and antihistamines. Strange. My body is such a complex creature. When she's unhappy, she lets me know it with both barrels!

I've been very busy lately. Living my life to the fullest. Family, kids, the ballet, stand up, late nights, company, booze. Not sticking 100% to my short chain fatty acid diet. Working out extra hard, pushing myself over my limit. It's time to pull back and turtle up for a bit. Let my body calm down and recover.




A little taste of my busy life

Post Script - My muscle weakness got much worse after I wrote this. My neurologist had a nurse practitioner call in and check on me. I had sent them a message last night about what happened. She urged me to go to the ER to run labs and just double check that I hadn't had a stroke. 

After 3 hours there I had every reassurance that what I thought had happened was what happened and nothing else. No infection. No stroke. Nothing else. It was very scary though and I'm for sure skipping my flu vaccination next year. This morning I'm feeling much better. 

Monday, April 17, 2023

Medical Catchup

It has been a while since I updated what's been going on medically. So here's the skinny...

My leg is feeling much better. It feels like it was maybe inflammation that pinched a nerve or something and just took a long time to heal. My MRI came back fine and neither the sports doctor nor the rheumatologist could find a cause for my extreme sudden pain. BUT...

The rheumatologist wanted to rule out some autoimmune disease possibly going on. He ran some labs. The results were interesting. So far it didn't flag for anything specific. But it did show up positive for many different things. I have a message in to him to see if we're doing more testing, or if that's the end of it.

Is this English?
Gotta love lab results.

I've actually been feeling better energy wise and have been trying to push myself daily physically. I'm sore all the time, but I feel good about stretching my body in what I can do.

I went through two treatments of dry needling. It did help my neck and shoulders. Only during the last few days have I been having pain there again. It's almost like intense acupuncture. It lasts a lot longer than that for me and I get goldfish crackers after. I'm not sure it's worth the discomfort of the process though. 

I'm still getting my Botox for migraines every three months. However I changed my monthly injections from Amivog to Ajovy. Ajovy is supposed to be just as effective without the constipation side effects. I've only had one dose so far. But I'd have to say it works just as well as Amivog, maybe even a little bit better.


Thank goodness all the rain is done. That change in barometric pressure all the time was incredibly hard on my head. I can actually feel sharp pain where my head plates are when the weather shifts. It's not a fun experience.

The pool is back open and my mom and I had our first swim last Saturday. I love the water so much. I feel like I can do anything in it. It's so supportive. Getting out is a monster though. I feel triple my weight. I just try and go really fast. That helps.


After recently topping 293.7lbs I pumped the breaks on my eating. My all time heaviest is 297 and I got concerned being so close to it. I can feel the difference in my body a lot if I get over 280. An adult male gorilla weighs 300lbs. That's pretty big for a Vegan. And a little too close to my size for comfort. 

Yum Easter candy!
What's life without treats now and then?

Fortunately my garden is doing well and the summer produce is ready for planting. That will help me eat more vegetables. Here's my latest haul of broccolini, purple broccoli, sugar snap peas and chives.


I also have my beautiful back patio to spend time in. It has been fantastic to eat out there while the weather is springtime cool and breezy. This Friday we're doing a family dinner and breaking in the Hibachi for the first time. I'm very much looking forward to it.


Symptom wise I'm feeling the best I have felt in a very long time. My sinus infection cleared up. My leg pain is down from an 8 to a 2. My energy is the best it has been since I can remember. And it's springtime. I'm taking each day as it comes and living my best life.

Max does his part to help.
















Monday, January 25, 2021

My Migraine

No... "Migraine" is much too small a word for what daemon has wrecked my life. The clinical term might be "migraine" but it's more like an evil possession.

Some of my current diagnosis

My muscle disease affects my body, but the migraines rob me of much more. Most days I feel like a shell... a ghost of my former self. It robs me of my memory, my attention, my eyes focusing, trusting what I'm seeing. It causes me stabbing pain, electric shocks, ear ringing, momentary hearing loss, throbbing pain, visual hallucinations and a general feeling of being really drunk or really high without ingesting anything.

Personally I think all of this is a side effect of my brain surgery on September 27th, 2018 (28 months ago). I read that nerve re-growth and associated issues can take around five years to heal. I would have proceeded with surgery anyway, but I wish someone would have gone over the side effects and talked to me about migraines.

My entire life I've infrequently had very minor headaches. I'd pop a few Excedrine and off it went. I knew people who struggled with migraines, but I thought it was just a super bad headache that maybe caused some nausea, light, sound and scent sensitivity and would last about 24hours. At best I feel like I knew a little bit more than the average person.

But when my migraine symptoms began it wasn't with any of that. I'd have a little headache behind my forehead. Just a tiny one. My symptoms started with feeling very dizzy. I felt like I was hearing myself talking from another room when I'd speak and hearing others talk I felt very far away. That's a big problem for a therapist. I was scared and had no idea what was going on. 

I quickly became too dizzy to safely drive. My husband began taking me to work. After that I could "hang in there" till lunch time, but the symptoms just got worse. With it came the crushing fatigue. I wasn't just tired, I was completely exhausted. It felt a little bit like a horrible hangover.

The headaches began getting a bit worse, but the other symptoms increased quickly. I started to have trouble focusing, both mentally and physically. My eyes would go blurry, like I couldn't physically focus. Of course I still had my muscle issues as well. The worse my migraine symptoms became the weaker my other muscles were. Soon work was ordering me a text to type program for my files as I lacked the physical stamina to type for any length of time. But nothing helped and I became too compromised to work at all.

I had no idea what was going on. I talked to my primary care doctor, crying in his office. He sent me to a neurologist and an ear, nose throat doctor (otolaryngologist). Both of them diagnosed me with migraines right away. I kept arguing that it couldn't be migraines as my headaches "weren't that bad!" I had no idea that migraines take many shapes for different people with an enormous list of effects. I sure know that now!

Every... single... day I struggle with nightmarish symptoms.
I can't work.
Some days I can't even leave my house.
I'm proud of myself for getting out of bed, dressing and showering.
A big part of my life has been reduced to that of a small child.
I have a lot of feelings about that.
Grief
Loss
Anger
Sadness
Fear

My current treatment regimen involves:
  • 32 Botox injections around my head and neck every three months.
  • Monthly Emgality injection.
  • A cocktail of Procholorperazine 5mg (for dizziness and nausea), Naratriptan 2.5mg and 2 Acetamenophin 500mg taken together as needed (but no more than three times a week).

These all help a little.
I'm still not myself though. 
Still unable to do very much.

The worse my migraines are the more exhausted I am and the weaker. It's a nasty cycle. I'm hoping something will click soon to cause a massive improvement or they will heal and go away completely. That would be wonderful!

Until then I sometimes struggle to feel my worth. It takes a lot of intention and attention to really live in the moment. Not let each one slide by in a fog. I do have a beautiful life and I don't want to miss out on any of it.








Tuesday, June 30, 2020

Same Symptoms, Different Day



I used to keep a running list of my symptoms and share them with all of my medical providers at each appointment. This was helpful in the beginning because we had no idea what was wrong with me. When I started the quest for a diagnosis it was 2018 (2 years ago) and we were thinking it could be rheumatoid arthritis? An autoimmune disease? All I knew was I had a lot of pain that left me crying at night.

What it turned out to be was:

  • Stocking glove pattern neuropathy
  • Benign brain tumor
  • Metabolic/Mitochondrial Myopathy
I also had a complete hysterectomy in 2015 due to major reproductive health issues.

I assumed at the time that my problems were mostly neuropathy (that I believed was caused by my Latent TB treatment the year before) and autoimmune. My symptoms were all pointing to RA being the main culprit. But then the sudden muscle weakness hit. From one day to the next I suddenly lost about 80% of my strength.

It took a very long time and many referrals to solve the riddle of my muscle weakness. The current consensus is that my mitochondrial cells (the power cells of the body) don't process energy correctly. I have 3 genetic mutations that have been identified that could be the cause. All of this is pretty new science so everyone is really just doing their "best guess." I've learned to be the expert in me.

Unfortunately either the brain surgery that I had in 2018 or my Mitochondrial Myopathy have cause me to also suffer from Vestibular Migraines. Shockingly these have been more crippling than my myopathy. So if you're keeping track it's:
  • Vestibular Migraines
  • Metabolic/Mitochondrial Myopathy
  • Stocking glove pattern neuropathy
  • Osteoarthritis (and possibly RA)
It's been about a year since I posted my symptoms. I also don't really keep track of them anymore. There's a few reasons for this. 

1) I'm tired of talking about it, looking at it and only being a "sick person."
2) My symptoms haven't really changed.
3) It's more useful to alert my healthcare team about NEW things if/when they come up.
3) New symptoms can get buried under my massive list of health issues and get overlooked by my doctors.
4) I have a great team who keeps good records of my health diagnosis, visits and concerns so it's a bit redundant at this point.
Rather than bringing in a list of symptoms with me now to an appointment, I bring specific concerns and/or questions that I have. I always take notes and I very very rarely go alone. This helps make sure I don't miss anything (as my memory can be a serious issue).

When I look at the list of my past symptoms I still have all of them. However, I also have treatment that helps me manage them. I feel positive that I will soon have treatments in place to help 100% of my symptoms be bearable.






Wednesday, February 5, 2020

Stopping Topamax


It is important to remember that even the best, most caring doctor doesn't know the whole story. Doesn't see the whole picture. They (hopefully) do their best to care for you but at the end of the day you need to be the REAL specialist, advocate, researcher for yourself.

That said, Topamax was not for me. I tried 25mg for one month. My neurologist wanted me to give it two months and I said "no thank you". I understand why he wanted me to try it for longer, but the side effects were too much for me and the benefits not enough. 

And a little advice about being a wise consumer. ALWAYS read the FDA information vs the information from the manufacturers website. Always. Just skip their website completely actually unless you're looking for a coupon or rebate.

These are my symptoms that got worse on Topamax:
  • dizziness
  • dry mouth
  • "foggy headedness"
  • forgetfulness MUCH worse
  • reduced my libido even more
  • wiped out my appetite.

Well, that last one wasn't bad, but for some people it could be. I was also on the very lowest dose for the very shortest time.

Both my dizziness and the migraines I think are from my brain surgery. Even though it has been a little over a year, I think the nerves are just now growing back and I'm experiencing pain and dizziness. That's my theory and I think it's pretty solid.

So far what has helped me more than the Topamax has been...
  1. Taking Potassium pills at night with plenty of water. This helped with the dizziness a lot. My neurologist suggested it when I said the Topamax was making things worse.
  2. Taking more Magnesium than what I was already taking. Again, recommended by my neurologist.
  3. Taking the over the counter supplement called "MigreLief". Recommended by... yup. You've got it.

There's plenty of other non medicinal things I haven't tried yet. I have my first follow up on the 12th with my neurologist and I told him I'd like to discuss them.

My muscle weakness seems to have hit a homeostasis (for now... Thank GOD!) That feels nice. I'm still doing what I can but careful not to push it. My body and I feel like we're on friendly terms and that's magnificent. I think she's a lot happier now that I'm not shaving her down like a sheep in the spring every few days. Hahah!

So now onto trying new things after my two week slow reduction off Topamax. Never stop any drug all at once or without notifying your doctor.


(I received no incentives and I'm in no way affiliated with any of the links on this blog.) 


Wednesday, January 22, 2020

January 2020 Update

It has been a while since I checked in as far as how I'm feeling. How I'm actually doing symptom wise. What I'm trying medication wise and how things are going. So (insert drum roll please - and maybe a didgeridoo just for fun) here's a January 2020 update!



Here's the meds I'm currently taking and why

Prescription Meds
  • LevoTHYROxine 125 mcg AM (taking for my hypothyroidism. I've had that for 17 years.)
  • Lyrica 75 mg BID AM&PM (taking that for my stocking glove peripheral neuropathy. I've had that for 5 years since treatment for the Latent TB. Likely caused by the treatment. It keeps me from feeling like I'm being eaten alive by fire ants.)
  • Cymbalta 60 mg PM (taking for joint and muscle pain. Also it helps for depression. I recently tried to wean off and was rewarded with severe pain. It's a must take.)
  • Baclofen 20 mg Three times a day(TID) AM – 12 – PM (a magical pill that helps with my muscle cramps and spasms. This is a muscle relaxer commonly given to people with MS. I found it on my own after researching treatments for muscle cramps and spasms after my neurologist told me my only option was CBD. Hmmmm. Nope. The Baclofen is wonderful.)
  • Topiramate 25mg BID AM&PM (This is "Topamax" that I just started for "migraines." Both my new neurologist and an ENT Dr told me I have migraines. This was suggested. It's an anti-seizure med but is supposed to work for migraines. We'll see. So for it has a lot of side effects.)

“Mito Cocktail” for Mitochondrial Myopathy
  • COQ10 Enzyme 1,500 mg total daily (300mg 5x a day)
  • L-Arginine 500mg daily
  • Vit. D 2,000IU AM
  • B-2 400mg AM
  • Magnesium 360mg AM – 500mg PM
  • Feverfew 100mg AM
  • Wild Alaskan Fish Oil 1,400mg BID AM-PM
(The first two are amazingly helpful. I'm honestly not sure about the rest.)These are all recommended for anyone with any kind of mitochondrial issue. It's the first line of defense and often the ONLY "cure" for mitochondrial disease of any kind.
-gulp-


PRN - Take as needed
  • Albuterol Inhaler PRN (apx 1x daily)(I take for asthma. I've had increasing problems with breathing last year)
  • Acetaminophen 500mg +2 PRN (apx 2x per week) (I take this for pain. It works better for me than Ibuprophen) 


Yes! All those drugs are really helpful. Well, almost all of them. But what makes a world of difference for me is rest and sleep. If I get enough of it I can function ok... usually... till around noon and then I start to get tired. 

By 3pm I REALLY need a nap. Then I nap from 3 or 3:30 till 5:30 or 6. That's what my body really needs. If that doesn't happen I feel super punch drunk all day.

I like to be in bed no later than 9pm. Yup. That's WITH a giant nap. Then I sleep from around 10 till 9AM. My sleep is usually pretty interrupted with having to pee a lot and drink a lot. Even with a cool mist humidifier right by my face I have dry mouth pretty bad at night. If I'm at all sick that gets worse times a thousand for some reason. 

I stopped shaving my legs and arm pits.

Here are some recent changes I've made to make my life easier and save spoons.

I'm a pretty fuzzy chick by nature. My family didn't give me the nickname "Little Bear" for nothing. And chasing my leg and armpit hair multiple times a week was fricken exhausting. I tried everything. Regular razors. Sensitive razors. Shaving cream. Razors with shaving cream built right in. Electric razors you could take right in the shower with you (so I could use them on my shower stool). 

But hey! Being six feet tall with legs to the sky (as my pictures can attest to) that still took forever and literally all my spoons for the day. I threw in the towel at the beginning of the year. And you know what? I actually don't have as much leg hair anymore as I though. I think after so many years of shaving many of my follicles have given up the ghost.

No more coloring.

I'm also going back to my natural hair color. 

Although the henna was fun and I did have one last dance with the box dye devil... none of it is ME. It all takes time, money (something I'll get to in a minute) and is just a cultural construct of beauty that I really don't need in my life. Again, it also takes spoons that I'd rather spend on other things like time with my family, art, writing, etc.


Sticking to my budget

We have a family budget and now that we bought Pablo it's VERRRRRRRRRYYYYYYYYYYY important that I stick to it. Like 100%. As in no more buying myself a little shiny bauble. But come on... it was my birthday and they're natural sapphires, miner cut set it platinum, real vintage from England... how could I resist!?!? Well... obviously I couldn't. But that's it! Last hurrah. I'll be good now honey, I promise.
Ok, back to symptoms.

They're the same really. I'm up to the full dose on the Topamax after two weeks which is 25mg 2x a day. I feel even dizzier, more tired and out of it than before. I'm hoping that's temporary. I'm willing to give it a month because trying to be as healthy as possible is my full time job.

Even though I meet almost every criteria for a Vestibular Migraine I'm not completely convinced that's what's going on with me (despite two wonderful professionals telling me it is). Why? Because I have these symptoms all of the time. They don't "come and go" or "trigger". They only get worse and very rarely get better. 

What makes them worse is physical exertion or a major visual trigger like flashing lights or staring at contrasting vertical blinds for more than a few seconds. Rest does make it a little better, but it is never, ever "gone". 

This feeling of dizziness, foggy headedness, constant exhaustion, forgetfulness and chronic pain is why I was no longer able to work. It had nothing to do with my lack of mobility. I can always work around that with my job. But not being able to track in a conversation or having my vision blur out or suddenly being exhausted, that I can't just "work around". That was a deal breaker.

So that's where I am. I very rarely drive and if I do it's super short distances. My mood is ok. I have bouts of feeling in limbo still because my permanent disability isn't secured yet. But I am on temporary disability for 7 more months and my student loan dismissal based on disability was approved, so that's a very big deal. I do feel I'm making some progress in my life as Pablo shows. He's like my personal boat taking me off into my new future and I appreciate that a lot. 
I appreciate my family, my medical team, my good health care and insurance, my puppy, my home, my wonderful healthy food, my plants that make me smile when I see them, my delicious coffee, the lovely town I live in. I am a very lucky woman in so many ways. 

My husband is the love of my life and my best friend. I'm so lucky to wake up with him every day. So I like to notice what I have instead of what I don't and what I have is a LOT!


Saturday, December 7, 2019

Pain

I hate that question that the nurse always asks at every doctors appointment. "Are you having any pain today? Where? On a scale of 1-10 how bad is it?"


Pain is subjective, personal and really hard to measure. I'm always in pain, everywhere. I can't remember a time in my life when my back didn't hurt. My best friend growing up knew this and would rub my back when I asked her to (the sign of a TRUE friend.)

A real friend has your back... Literally

I take Cymbalta 60mg every night for joint and muscle pain. It helps tremendously. I also take Lyrica twice daily for neuropathic pain. That also has been a life saver. Occasionally I'll take Acetaminophen if the pain gets too bad. Ibuprophen is supposed to help with inflammation, but I haven't found it to be useful for my pain. I'm not interested in taking anything else for pain management medically due to the risky side effects and dependence.


Pain has always been a part of my life but I'm not ruled by it. I find new symptoms much more disturbing and disruptive. Like the chronic dizziness, lack of stamina, weakness, etc... 

I long for the day when we can all just be scanned and have a report come out saying exactly what's wrong with us. Then a machine will pop out one pill that you take a day that will fix everything. I mean they did it in Star Trek! Why isn't that a thing yet!?







Magic

If I was told 3 magic beans would improve my quality of life I would buy them and eat them. Move over Jack. Every time I try something new, ...