I'm Not That Person... Yet

In my dream life... 

I'm up with the sun at 6AM. I start the day with a protein smoothie (not a giant mug of coffee). I pull on my workout clothes, kiss my dogs and head to the gym. After an hour of yoga or swimming I come home, shower and dress for the day. It's now around 9AM. I take my puppies out for a walk or adventure in town. They come home pooped and we're all ready for some food. I have a healthy little cup of yogurt, blueberries and gluten free granola (or some hot oatmeal). 

It's now around 10:30. Time for some art! I work on a painting, or drawing, or just play around. Maybe I even have a pottery studio? I throw on my apron and do some sculpting. Or perhaps photography? Art till 12 my dear.

I break for a small lunch with my honey. Maybe a chicken salad? Light, healthy and filling. Protein to keep me going through the day. In this dream life I have no cravings and am satisfied with what I have. 

Look at everything I've accomplished and it's only 1PM!

Now I work from 1-3PM. Maybe it's writing a book, paperwork for my support groups, volunteer work or just reading a good book.

3-4 House time. I work on a house project, garden, meal prep, do laundry or clean something up. 

It's already 4PM and now it's time to walk the dogs again. After another adventure they're ready for their dinner. Lucky dogs. I play with them after dinner. 

5-6 I'm on my computer. Blogging, e-mailing friends, posting pictures of my art. Whatever I choose.

6 We start making dinner together while talking about our busy day. We're both tired, but happy.

7-9 TV while getting my feet rubbed and petting the dogs. I'm sandwiched between them loving life.

9 is bedtime. I'm exhausted after such a busy day.

Although this isn't my life yet, it's pretty close. I still rest most days in the middle of the day. Like 3-5PM if I do. I also tend to sleep in almost every morning. Some mornings I even sleep till 10AM. I can't tell you the last time I was up at 6AM.

I haven't been back to my gym in two weeks. Something I want to remedy. A long time to go without vigorous exercise or yoga. I'd like to be more consistent.

Life happens. Things get in the way. I want to learn to pivot better and stick with what really matters to me. Art, health and happiness.

Onto The Next Phase

Life echos the rhythms of nature. Stagnation leaves growth impossible. Buddha says that attachment is the worse thing you can do. "Let go or be dragged." I love that saying. Nothing lasts forever. These beliefs help me savor each moment as it comes as well as embrace all new things that tickle my fancy.

My latest interest has been Yoga. Nothing has helped me with my strength and balance like Yoga. It also helps calm my mind. I've been taking a weekly class at my gym and just love it. I miss it if I don't get to do it. My teacher, Tish guides us through an hour of Vinyasa Yoga.    

I decided to create a specific Yoga/Art studio out of my spare room in my house. It has been serving as a guest room. I used to spend a lot of time in there on the bed with Max, watching TV while my husband was working from home in the main part of the house. But that was when I was very ill. Now I want a space to do art and move my body.

How the space looks now. Mostly just a big bed.

Getting ready for a change. Anyone need a big bed?

My Yoga mat and "gym drawers" are the most recent addition here.

Where my gym bag lives with some images to motivate me.

Along with space to move and a small table for art I'd also like to add a bar for stretching out. I find that very helpful at the gym. A ballet bar attached to the wall. And I scored a beautiful, free, lime green chair from a neighbor that will be tucked into a reading nook. No need for a TV in this room anymore.

As I change my home changes with me. I'll never understand people whose homes remain exactly the same like some kind of time capsule. I find it very uncomfortable. I like my home to echo my life and serve me and my goals, passions, needs.

I'm excited to get started on my room. Now I just need to get rid of that bed!!!!

Fears

I had my eyes checked at the end of August and bought a pair of expensive glasses. Then a few weeks ago I needed more contact lenses, but my current prescription was feeling a tad weak. I went back to my eye doctor and he re-checked me. Within four months my eyes had changed a little for the worse. But that's not all...

I feel like I don't see quite as well as I used to when I'm driving. Especially at night. Part of mitochondrial disease is having compromised eye sight. That scares me.

I don't take any minute for granted with my muscles. Knowing that I still have mitochondrial dysfunction makes me fear a relapse. That I'll suddenly not be able to walk or use my muscles anymore.

Taking joy in my pottery with my cute new glasses

I combat these fears with fitness. Working out makes me aware of my body and its limits. I enjoy it. I miss it when I don't do it. I especially love Yoga. Which is a big surprise. I love how aware I am of my body when I do it. It has also helped me the most with my strength and flexibility. Being able to lift my arms above my head is a thrilling accomplishment and I feel I have Yoga to thank for it.

When I exercise it verifies what my body can do. What I'm capable of. Not what might happen in the future. Today I am strong and can still see. Yay!

Five Years Later...

Sometimes I like to go back in my blog and see what was happening five years ago that month. In November 2018 I purchased my first wheelchair and received my first accurate diagnosis of Metabolic Myopathy. It feels more like ten or 20 years ago. 

The world was without Covid. I was still working full time. My mother was still living in England (not right around the corner.) Life was incredibly different.

Right now I have the luxury of time. I'm able to spend the bulk of my time rebuilding my body. I often feel like the bionic woman. Remember her?

I'm being re-built one trip to the gym at a time.

Five years ago my body was changing in ways that terrified me. Now I'm changing in ways that are thrilling. I see my muscles getting stronger. Change I can actually see! Daily! Change that I'm causing by my actions, not that I'm a victim of. It feels amazing.

Finding A Rhythm

It has been a month now since my mom and I joined a gym together. We've been going regularly four days a week. That's a lot for bodies that up to now have only been in the pool with water weights. I say "only" but girl we slayyyyyyed in that pool! 

It still feels so strange to be able to do "normal" activities WALKING!

We're game for a change and tried most of their classes together. I was able to go back to doing zumba (HUGE YAY!) My big love from before I became disabled. My mom found out she loves water zumba. We are women who love to dance. 

I have discovered that right now I can really commit to three days a week. Monday, Wednesday and Friday. I need some recovery time and time to walk. I'm still working on my walking muscles too. Our gym has a fantastic track that goes through the second story. It reminds me of the train ride at Disneyland that takes you through all the lands. I can see the pool below me, see people behind glass taking a fitness class, others doing machines and weights. That makes it fun. 

But nothing beats walking this love bundle...

Max has been left at home while I'm at the gym. He was home when I would swim before, but it feels like a longer amount of time now (even though it's not). Most of the time he's not even alone. My husband works from home all but two days a week. We're talking about getting him a little sister next year. We'll see. Pets are expensive no matter how small they are.

In the meantime I'm finding my new rhythm knowing even this phase won't last forever. I'm just here, doing my best, enjoying each moment at it comes.

My Job is Me

Have you ever wished "If only I had the time to focus on myself and get into shape." I used to wish that constantly. I thought if I "only had the time" then I would be so incredibly strong and healthy. Well... now is that time for me.

My mom and I are going to be joining a gym. It's a bit of a trek away, but totally worth it. It's beautiful and it has everything. Everything we both need to become the strong warrior women we want to be. So NOW is my time. The time for me to focus on myself, my body and my health. To shape myself into the incredibly strong woman I want to be. 

Stay tuned for my progress...