Feeding Myself

I'm watching a show about Native Alaskans and a woman said something I love. "Everything is medicine, especially the food we eat." It's easy to forget that in today's fast paced world. I'm very fortunate not to live in an urban food desert and to have money to spend on pretty much any kind of food I choose. From wholesome organic food to junkie fast food. It's all up to me.

I have a troubled relationship with food and feeding myself. I'm really not sure even when it began. When I was younger I looked at food as an inconvenience. Something I just HAD to do. Stop playing and eat. Of course unless it was something super good like pizza. But even then I would just eat what I wanted and stop when I was full.

Something switched when I became a mom. Maybe it was eating my son's leftovers? Or eating for emotional reasons (eating my feelings.) I don't know but something changed. I began to over eat, eat at the wrong times and eat convenience foods. 

Every Friday was "treat day" for my son and myself. "Treat" meant fast food. I would pick him up from school and we would drive through the fast food of his choice. Yikes. I cringe at that now. I'm older and wiser. Sadly my now fully grown son is completely addicted to fast food. I can't help but blame myself.

But back to me.
I struggle with feeding myself. 
When and how much is a constant battle for me.

My natural setting is to eat nothing till later afternoon, then have something small. But when night comes the beast is unleashed! I love a very large dinner followed up with dessert. BOOM! More than a days worth of calories all at once.

How I "should be" eating for my mitochondrial disease is the complete opposite. Small meals with very high protein through the day. 

Then there's the ethical side of eating. At least for me.

I LOVE ANIMALS! All animals. I wish I could have a complete menagerie (and the staff to properly care for them.) Dogs especially, but seriously. All animals are wonderful. The way farm animals are treated here and in Asian countries is despicable. Really disgusting. So one of my goals for this year was to stop eating mammals.

In the past I was a vegetarian for a year and a Vegan for two years. As much as I wish I could be Vegan it's just too hard for me to get enough protein that way. I have low protein levels as it is, so I need to be careful. And when I was a vegetarian I increased my dairy (mainly cheese) to unhealthy levels. Plus I was still contributing to the cow/dairy industry which I didn't like.

I'm hoping by cutting out mammals I can find a healthy balance between what I need nutritionally and what I can do ethically. I can cut back on domestic cheese. I can eat more goat and imported cheese when I do eat cheese which is far more ethical and healthy. I will still eat eggs, but from certified humane farms. I enjoy organic free range chicken (not from factory farms) and that's a great source of protein. Fish I'm working on loving. I do love seafood, but honestly not more than once a week.

Why do we love some animals and eat others?

Beef is my favorite meat, but I just can't justify eating it anymore. The older I get the more I don't think it's very healthy for me anyway.

A healthy balance is what I'm striving for. 

Lately I've been enjoying either a protein bar or small yogurt cup for breakfast. Lunch is typically leftovers from the night before, egg and toast with a banana or a sandwich of some kind (like tuna.) Or if I'm fortunate then I'm at my mom's house and she's making me something fabulous. Like cod, baked potato and salad. I'm so lucky.

These are my absolute favorite

Dinner is still commonly my biggest meal. That's something I still struggle with. Both my husband and myself want to try and make lunch our biggest meal of the day, but it's a challenge for us. Dinner is usually fish tacos, chicken curry over potatoes or soup and quesadilla. We diversify our diet a lot with dinner. 

Dessert is something I'm working on cutting out all together. Unless it's a special occasion. I used to have a serious thing for Junior Mints. My nutritionist recommended replacing them with super dark chocolate bars (since you can only eat a little bit of them at a time.) I did and I find that I just don't want it that often. Although I'm guilty of making other gluten free goodies like chocolate chip cookie bars. But not very often.

I notice I'm not as hungry when I eat a high protein diet. My nutritionist also recommended eating a little bit of carb with every meal since it's carbs that convert protein to energy your muscles can use. I didn't know that and I had been eating super low carbs thinking it was healthier. So that's another small adjustment I made.

It would be fantastic if I could cut sugar out of my diet. I'm sure it would help with pain and inflammation. Sadly I'm addicted to my sweet sweet cup of coffee. Just one cup a day, but I need to have it sweet. I'm also still searching for the perfect non dairy coffee creamer. -sigh- I'm just a work in progress. Even at 50.

Did you know that...

• 10 Billion animals are slaughtered each year in the US.
• 99% of those are raised in a factory farm.
• Globally 80 Billion land animals are slaughtered for food each year.

This one shocked me and got me thinking...

I Made It to 50!

I've been 50 years old for less than a month now. I have some thoughts about it to share. Firstly I feel incredibly lucky to have made it to 50. I will never understand people who get depressed about aging. Quite the contrary. I feel incredibly fortunate and grateful to have lived as long as I have. 50 Feels like a big gift.

Also... Much of my life keeps getting better the older I am.

My 20's were entirely devoted to being the best mother I could be. My 30's were about my marriage and working on our relationship. Communication and lots of therapy. My 40's were completely about being in school to build my dream career. Then illness struck.

What will my 50's hold?

I have no idea. But I'm excited to see.

Covid Three Years Later

My husband and I attended a live show yesterday. It was my first one indoors since COVID began three years ago. Officially COVID was declared a pandemic in March, 2020. But it began much earlier than that and was already thriving in many countries this time three years ago.

Fast forward to now. There have been three immunizations for three different mutations. We keep having new mutations however because of the lack of people willing to be immunized. Of course I have had all three the second that I could. I've also never contracted COVID (that I know of. I never tested positive.)

COVID is still very much alive and well but most of the "civilized" world has decided it is not. People are tired of wearing masks everywhere and tired of being told what to do. So everyone has just mutually agreed that it's not a threat anymore. Even though it is. 

The issue with that "solution" that I have is that society has then silently agreed to:

1) Keep mutating COVID into new forms requiring new vaccinations.

2) They are ok with old people dying horrible deaths (as the most at-risk population.)

3) They are ok with babies and young people dying horrible deaths.

4) They are ok with chronically ill people dying horrible deaths.

Yeah... I'm not ok with any of that.

Especially ME dying a horrible death (or anyone I love for that matter.)

There are millions of people with compromised immune systems and compromised lungs out there. Myself included. That's why when we went to the show yesterday both my husband and myself "masked up." And you know what? I wasn't at all surprised that we were in the vast minority who did so. I saw maybe 10 people out of the thousands that attended the packed show.

This included my husband's family. None of them wore a mask. 

I think that people believe vaccines make them "safe." Like a condom protects you from a pregnancy. It's about the same percentage I believe. A bit of "Welllll... it helps and it's better than nothing, but don't be too shocked if it fails." The "rubber vaccine" should be its new name. Hah!

That's the last big indoor event I'm attending for a while. Although I enjoyed it, it did make me nervous. I'll continue to vacillate between "I'm not doing anything indoors ever!" And "I have to just keep living my life." It's a very interesting time to be in. 

Let's talk about pain

Something I don't talk about is my pain. Not in my journals, here or in person. The last time I talked about pain specifically here was four years ago.

I do talk about it... LOUDLY with my medical team. However, even with them there's this sense of "Yes. You have pain. And? What do you think we can do about that?" Or at least that's what it feels like to me.

A lot of the time it feels futile to even broach the topic of pain. I know I have pain. Tons of it. But it's so subjective and hard to describe that I rarely do. How do I begin to talk about pain? There's the 1-10 scale.

This is the old-school traditional one that's useless.

My pain is usually a 6 all of the time.

Although this pain scale is better, it's still not perfect.

The last time I saw my muscular team I let them know ahead of time that pain was the number one thing I wanted to talk about. Even then I had to bring it back up at the end of my appointment. A quick medication review and she stated "It looks like you're already maxed out on meds. Have you tried acupuncture?" That's every doctor's answer to everything. Physical therapy and acupuncture. 

y'all make me tired!

Instead I asked for a referral to the "pain clinic" I'd heard about vaguely in the past. Like a hushed secret from someone. I had no idea what it meant, but it had the word "pain" in it so I figured it was at least worth a try.

Now here comes my least favorite part of all medicine.

Once at the mythical "pain clinic" I was asked "Where is your worst pain." "Well... my whole body! Let's start there!" On the meticulously filled out paperwork I clearly stated that I have 

• Burning pain
• Pins and needles
• Aches
• Soreness
• Pulling
• Throbbing
• Stabbing

All of these are from different parts of the body and I'm guessing have some different causes such as neuropathy, arthritis or my muscle disease. But I chose my back as the worst. She poked and prodded and yes... "elicited a pain response." That's medical jargon for "hurt me." Then came up with a plan to treat that specific pain.

Insert eye roll here.

I am not a single issue or body part. I am a whole body. A person. So why the medical field insists on treating individual body parts I will never know. It feels incredibly frustrating and antiquated.

I agreed to try a procedure called "dry needling" on my back. I'm hoping it helps with the chronic pain I have there. I guess the rest of my pain will have to watch on in horror. "Let this be a lesson to the rest of you!"

My second "pain clinic" appointment was with a social worker. It was interesting. He recommended some books to me and a support group. Unfortunately the group meets smack in the middle of my rest time. I told him if they start a morning group I'd be interested.

He also wants to meet with me over the computer to go through some CBT techniques for pain. I'm guessing I already know them all, but I will try to keep an open mind. 

I bought the book he recommended:
You Are Not Your Pain

The pain community is big into mindfulness.

I appreciated the reminder that it can be a tool. One that I stopped using a long time ago but am open to giving it another try.

So although I felt heard, it was also frustrating. Other than taking opiates, which I have zero interest in ever doing unless I'm actually dying. It feels like there's few options.

What helps my pain is:

• Distraction (eating, petting my dog...)
• Heat
• Gentle movement (stretching)
• Rest
• Massage (from my husband)
• Salonpas, Ibuprophen
• My Lyrica, Cymbalta, Amantadine & Baclofen

I'm also trying to talk about pain more and let my husband know when I'm in pain. I thought maybe like anxiety and depression, pain likes silence. So I'm working on that.