I'm melting and I can't get up

Oh LORDIE! Summer is here. We've had weather in the high 90's already. Multiple days in a row. Something I've learned about my mitochondrial disease is that heat affects me in a major way. Too cool and my muscles cramp and spasm. Too hot and I very quickly wind down and have zero energy or muscle strength. Jeeze. win-win. Strangely humidity doesn't seem to effect me as much as it did when I was healthy and able bodied. 

It's not all fun and games when I'm too hot or too cold.

I was just outside talking to someone for about 15 minutes. It's exactly 90* outside right now. I literally felt like I was going to die.

Some great tips to keep cool that I've recently learned are:

• Vicks Vaporub (menthol gel) or peppermint oil on your skin will help you cool off fast when combined with a fan.
• Keep ice or a cool towel over your heart and on the back of your neck.
• Keep an electric personal fan on you.
• Wet a scarf and wrap it around your head.
• Stay inside where it's air conditioned. Hah!

IT BURNS!

I'm going to have to learn to turn people down for outside activities during the summer unless at night or involving a swimming pool. A new area to advocate for myself. And like most things going on with my body, this temperature sensitivity seems to get worse every year.