When I was at my lowest point I only had energy for tiny tasks. Showering, feeding the dogs, minimal hobbies to keep my spirits up (like house plants) and medical appointments. Just the bare minimums.
With the change in my diet and new medications and supplements I now have enough energy to broaden my life a bit. You know... to include other people and things. What I changed was:
- Results of genetic testing suggesting I have issues processing long-chain fatty acids.
- Now I eat a Vegetarian diet full of short-chain fatty acid foods.
- I take Amantadine 100mg, two pills in the morning. It helps with muscle pain, cramps and tremors.
- I recently added an amino acid called Nicotinamide Riboside 300mg. I take 2 in the morning. It helps with my energy in a massive way.
- I've been using the "Visible Pacing app" for people with chronic illness. It's like an anti-Fitbit for people with fatigue diseases. (not an endorsement)
These new tools have been very helpful in making sure I have a bit of extra energy. I now can spend time with my sisters and their families, with friends and making new memories.
Even away from my baseline I'm still doing better than I was.
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