Tuesday, August 22, 2023

Getting The Hang of This

Today marks four weeks since I received the big news about my genetic mutation. I met with my wonderful primary care doctor (who is sadly retiring) last week. He thought it was so amazing that I could have both a protein mutation and an enzyme mutation. I don't make COQ10 on my own and I can't process any long-chain fatty acid foods.

Lucky for me I can take COQ10 as a supplement and change my diet. These four weeks have gone by very quickly. It has been "All hands on deck" for my mom, my husband and myself. We are learning as much as we can about all foods. It's very hard to find pre-made food that fit the bill. Eating whole foods while out, or making it ourselves is the best way to go.

From pasta sauce to crackers, long-chain fatty acids are everywhere. I'm very fortunate to have extra eyes reading labels for me. I thought I had found a good oat milk for my coffee, but it turns out I was wrong. Then my mom found this.

Just oats, no oils.

I'm so happy this happened during summer while I have gobs of fresh fruit and vegetables at my fingertips. This has been my "go to" for lunch lately. So scrumptious! Fresh bread that my husband makes for me, local goat cheese with fresh pepper, roasted chicken breast, delicious juicy tomatoes topped with lavender sea salt. I feel very advantaged to have access to this food.
Those sweet and spicy pickles are addictive.

I feel like I'm really getting the hang of eating this way. I don't feel like I'm missing out at all.

My walking is going very well. I still feel a bit gangly and not quite like I used to when I walk. But it hasn't been very long. I know those muscles will take time to go back to the way they used to be. I'm having patience with myself (something being disabled has taught me.)

Eating out takes a little tweaking. Mexican is pretty safe as long as the beans have no lard. I haven't had any problems so far. I also do a lot of research before hand when we eat out, so I know just what I'm ordering. 

My mom took this picture of me the other day and it perfectly captures how I'm feeling. Like I've been re-born. Given another chance at a strong healthy life. I crave physical activity now and I want to keep it that way.





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