Friday, September 9, 2022

Powering Down

 So this is a thing...




It's called Livedo Reticularis. My doctors think I developed it from my Amantadine (aka: God's Cure Pill). It came on in May after my horrid sinus infection. I think they're wrong and it's from that virus. But they wanted me to stop taking Amantadine till I can be evaluated by a Dermatologist. Insert two month wait here.

Unfortunately without my Amantadine, this happened...

No, I didn't turn into a turtle. Not even a Ninja one.

Everything became slooooooow. I'm more tired in the morning (though I am sleeping deeper). The worse of it is my muscles became about 50% weaker. It has had a huge impact on my quality of life.

It has been about 11 days now with no improvement in my legs. They get much worse if I stand or walk. Last night I messaged my doctor to see if there's anything we can do while we wait to see what the dermatologist has to say. Blood labs? Antibiotics? I'm feeling desperate.

Because I'm moving less I also hurt more. It's a mess how that works. It's also been too hot to swim this week, which STINKS! Swimming helps me feel much better.

In the meantime I'm eating more to self-sooth, which isn't really helping my body either. ACK!
This little guy always helps!

I just have to ration my spoons even more than I was before. I have about 3 spoons per day or so when I used to have 6-10. And bathing always takes at least 1. Bummer.

I'm hoping for a situation update soon!





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