Tuesday, May 7, 2019

Is it or isn't it?

Back in April of last year I was diagnosed with Rheumatoid Arthritis (RA). But recently I've started doubting that diagnosis. I think the symptoms of RA mirrored what could have really been Metabolic Myopathy.




Symptoms of RA include:
  • Fatigue
  • Pain
  • Swelling
  • Redness
  • Joint Stiffness (especially in the morning or when getting up after sitting a long time)
  • Joint Warmth
  • Loss of range of motion
  • Both sides of the body usually affected the same
  • Anemia
The symptoms of the type of Metabolic Myopathy that I have (Primary Coenzyme Q10 Deficiency):
  • Fatigue
  • Weakness
  • Muscle spasms (dystonia)
  • Poor muscle tone
  • Progressive muscle stiffness
  • Abnormal eye movements
  • Some other serious stuff I don't have like seizures and kidney failure
What led my Rheumatologist to think I had RA was an abnormal MRI on my right hand (some water retention and swelling) and some abnormal labs. But now I'm wondering if that also couldn't have been MM? 

My muscles have been hugely affected lately by the bronchitis I came down with. Something that my Neurologist said could happen. Last night my hands hurt so much it woke me up multiple times. My hands hurting is one of the first symptoms of RA that I had. But when I thought about it I'm not sure it was a joint pain hurt. It felt more like it could be the muscles in my hands.

The same thing happens to the bottoms of my feet. It can feel like I've been walking all day over rocks and in reality I hardly walked at all. It's very strange. Another major symptom for me is my peripheral neuropathy. As far as I can tell MM can cause that. RA does not. I always assumed it was a side effect from my TB treatment, but now I'm not so sure. Of course I could just also have both (gag).

I'll have to talk to my doctors about all this and see what they think. I'll be curious of the hand and foot pain get better when I'm 100% no longer buggy. 


1 comment:

  1. Whichever it is I hope they can get a handle on one or both of the diseases. I miss you on the other support group.

    ReplyDelete

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