I feel strongly that expectations are the tool of the devil. And yet I fall prey to them constantly. My husband and I just went away for a seven day vacation to Oahu Hawaii. And yes, I had expectations.
I got tired, but still wanted to be in the ocean. Our hotel had free floaties for use, so I grabbed one. Just like the shark in my tattoo. Good choice.I (foolishly) expected I could make it through two major airports with just my rollator and leg brace. I expected to be able to walk through a large museum with just my rollator. I expected to be able to do a 1/2 mile walk, swim in a waterfall and then walk back the 1/2 mile.
Where did these expectations come from? I believe it's from my own internalized ableism. Seeing medical equipment as "lazy" or "not pushing myself." I mean, I can walk, right? Well, that's a loaded question. I can walk, just not as far as I thought.
I also learned that staying in a hotel is very different then staying at an Air B&B. There's the walk down the hall to the elevator, out the elevator to the breakfast buffet, back down the hall to the elevator, down another hall, to your room. That's a TON of walking and we haven't even really started our day yet. It took a toll on me fast.
This was my takeaway:
- Always stay in an ADA room if staying in a hotel. I need a shower stool.
- Always bring my travel electric wheelchair on vacation. I never know how far I may need to walk or how long I'll be standing.
- Energy conservation and naps are my friends.
- Expect I'll get "travelers stomach" and start on the daily pepto right away.
- An Air B&B has it's advantages. Like a short walk to the car and laundry facilities.
- Be kind to myself. Don't compare myself to others or even to what I used to do.
- Be able to pivot to a DME anytime I need it. Don't try and "push through."




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