One good day after another

My "Mito Cocktail" has been helping my energy and muscle weakness in major ways. First came a huge increase in my energy levels. As anyone with a chronic disease/illness knows fatigue is a crippling part of it. Sometimes the worst part. Rest never revives you and you're just always running on zero spoons. So to feel energetic, even if my body disagreed was fantastic.

Next came an improvement in my muscles. I'm not "back to where I was" last year, but I think a big part of that could just be my loss of tone and strength from having to sit so much.

Shopping with just a cart. What a joy!

I see my neurologist April 2nd and have a slew of questions for him. I know the mitochondrial disease is "un-treatable" but I don't know if that means my symptoms will get worse over time, or if we halted the progression with the medications? Should I expect this relief to be short lived? Could I regress back at any time? Or is this my new normal as long as I keep up with the meds?

Having a chronic illness has taught me a lot about living in the moment and doing what you can for that day. I feel like I appreciate things more and I'm much less fearful. I really do make the most of each day, and that feels like a wonderful gift.

For example, I'm a "rubenesque" woman. I've never worn a bikini my whole adult life, but I've always wanted to. In the past I've told myself "I'm too fat. I couldn't 'pull it off.' Maybe when I lose weight I'll think about it." But guess what I got last week? Yup, a hot a$$ bikini. At 46 years old and being a size 22 (US size) I bought a fricken two piece. And not the blousy tops with super high pants kind that look like a one piece. I bought a hot push up underwire bra and low slung bottoms bikini. And I feel like a Goddess in it (and my husband agrees that I look fantastic.)

I mean seriously, life is way to short and precious to second guess, judge, hold a grudge or doubt yourself. If you want something bad enough, just make it happen! But enjoy the ride. I'm enjoying my ride regardless of what my body can or cannot do in any given moment. And I'm grateful for what I have while I have it.